Kids get Arthritis too!

A social network of support for families touched by JIA

Members

  • JoT
  • Kristina
  • Jess Ellermeyer
  • Michelle A
  • Tara Anderson
  • angela
  • Susanne
  • Laverne Ireland
  • EstelleLewis
  • Vicki Frittmann
  • Vicki Frittmann
  • Hannah Rose Yohnk
  • Jess Maiden
  • Danielle Tipton
  • Anne
  • Grant Turner

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Welcome aboard!

G'day,

Now, while this site is called "Kids get Arthritis too!", it's not designed to simply dwell on the disease and its impact on our lives.

Rather, I see it as a place to share support, stories, and any silly stuff that might brighten someone's day, or provide a place to showcase the incredible talents and abilities in our midst.

Because, let's face it, there are a lot of ups to go with the downs!

Best,
Jx
7 July 2009

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Blog Posts

JoT

big news for Bayly

Last Tuesday (20 April) Bayly and I went to Westmead Children's Hospital (WCH) in Sydney to start

the Screening process for a new drug trial for the biologic known as Etanercept (AKA Enbrel). It has been a loooooong time coming and still cannot come soon enough for our liking considering the terrible flare-ups Bayly has been suffering.



Due to very active and aggressive arthritis in his little neck, Bay has been unable to…
Continue

Posted by JoT on April 26, 2010 at 9:26am

JoT

Angel's Wings

There’s a 12 year old girl on the other side of the world waiting for God to take her home.



I’ve never met her- or her mother for that matter- but my heart is breaking for them both.



As a parent, you never expect to outlive your children. It’s just not the way it’s supposed to be.



And as a mother, you simply never expect there to come a time when your child decides it’s time to stop fighting, and asks you let her go.



But as I write this, that’s… Continue

Posted by JoT on January 30, 2010 at 4:55pm

JoT

Live JIA Simulcast: Web & Tv (Australian)

Juvenile Idiopathic Arthritis: Clinical Guideline for Diagnosis and Management LIVE simultaneous Satellite Television Broadcast and Webcast



Tuesday 9th February 2010 (8.00pm Australian Eastern Daylight Savings Time) Repeated broadcast Friday 12th February at 12:30pm AEDT.



Produced by the Rural Health Education Foundation with funding from the Australian Government Department of Health and Ageing



Click for full Program Information…

Continue

Posted by JoT on January 25, 2010 at 5:30pm

Laverne Ireland

Catch 22

Hi all. It's been a horrible week and a half for Charleen. She just came out of hospital yesterday. She started with high fevers and flu symptoms and then 2 days after that had explosive watery diahrea (even when she slept). I took her to the hospital at 4am Friday morning and the dr said it's just a virus and sent us home.

After being home a couple of hours I could see she was getting worse by way of dehydration and took her back. Another dr was there that knows Charleen well (as well as… Continue

Posted by Laverne Ireland on December 4, 2009 at 12:29pm — 2 Comments

JoT

Sink or Swim

With summer coming on I started thinking it was the right time for a refresher course in swimming.



Oh not for me- I avoid a swimsuit like a cat avoids a bath- no, for the children (who have no qualms about being seen in spandex- or even in their undies if the urge strikes).



Since we happen to live on one mighty big island, with our home nestled between a lake and an ocean, I’m all for teaching water safety from a very early age. I mean, it takes a… Continue

Posted by JoT on November 9, 2009 at 3:00pm

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Latest Activity

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Kristina updated their profile Jul 26, 2010
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Kristina is now a member of Kids get Arthritis too! Jul 26, 2010
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Jess Ellermeyer is now a member of Kids get Arthritis too! May 10, 2010
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Michelle A updated their profile Apr 30, 2010
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Michelle A is now a member of Kids get Arthritis too! Apr 30, 2010
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Tara Anderson commented on Tara Anderson's album
Hi How are you? How is Bayly? Jake is doing well. He's 4kg now and still going through a growth spurt. Mick flew down for the weekend to give me a break and allow me to sleep which was great. Hopefully Mick will move down mid may. I hope the…
Apr 26, 2010
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big news for Bayly

Last Tuesday (20 April) Bayly and I went to Westmead Children's Hospital (WCH) in Sydney to start the Screening process for a new drug trial for the biologic known as Etanercept (AKA Enbrel). It has been a loooooong time coming and still cannot come soon enough for our liking considering the terrible flare-ups Bayly has been suffering.Due to very active andaggressive arthritis in his little neck, Bay has been unable to lift or turn his head for 6 months now (he turns his entire body- try it,…See More
Blog post by JoT Apr 25, 2010
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JoT commented on Grant Turner's group 'Inspire!'
~ ORIGIN UNKNOWN ~ It is not known who replied, but there is a beautiful soul working in the dead letter office of the US postal service... Our 14 year old dog, Abbey, died last month. The day after she died, my 4 year old daughter Meredith was…
Apr 25, 2010
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catching up with things!
Status posted by JoT Apr 25, 2010
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JoT commented on Tara Anderson's album
How's your lovely little man going Taz? How are YOU? Jx
Apr 25, 2010
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angela is now a member of Kids get Arthritis too! Apr 20, 2010
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Photos posted by Tara Anderson Mar 20, 2010
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Photos posted by Laverne Ireland Mar 15, 2010
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Celebrate!

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Here's a group to announce those achievements, awards, or any other success you want to share!
EstelleLewis joined JoT's group Mar 6, 2010
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EstelleLewis commented on JoT's photo
see how that ray of light shines right on Bayly in this photo : )
Feb 28, 2010
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JoT left a comment for EstelleLewis
Hiya, Just wondering where Master Riley was up to regarding starting Enbrel AAAAND how's he going at school??? See you next weekend at Camp Twinkletoes? Jx
Feb 21, 2010

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